The Sick Children’s Trust believes keeping families together significantly improves the recovery of seriously ill children.
They provide free, high-quality ‘Home from Home’ accommodation, as well as emotional and practical support, to families with sick children in hospital in the UK.
Between October 2017 and March 2018 Charlie was between PICU and Ward 23 HDU whilst on the urgent waiting list at the Freeman Hospital.
The Children’s Heart Unit Fund (CHUF) support the children and families who receive treatment by the Children’s Heart Unit Staff based at Freeman Hospital and raising vital funds for large and small pieces of equipment, facilities, aftercare, salaries and research.
In January 2018, our twin girls Lizzy and Rosie were born on Charlie’s first birthday. In February, Charlie had a successful heart transplant.
Following medical investigation of possible genetic inheritance of DCM, our daughter Rosie, Ali herself and Ali’s brother have been diagnosed with Dilated Cardiomyopathy.
Charlie and Rosie will continue to be monitored regularly at Alder Hey and The Freeman Hospital over the coming years as they are growing up.
Finally, we will never forget that Charlie’s gift of a new heart was such an amazing and brave thing for the family to do who have sadly lost their child, therefore we are supporting Child Bereavement UK.
Child Bereavement UK support families and educate professionals both when a baby or child of any age dies or is dying, and when a child is facing bereavement.
Carl, Ali & Octave will be doing a lot of events to help raise awareness and money for each of these charities.